1、Role of Culture in Palliative Care: Family MeetingPingfen Tangprofessor of NursingKunming Medical UniversityWHO emphasize that the family is the basic unit of end-of-life care 1, family deathbed is very popular in some developing countries 2 which the long-term palliative care is mainly provided by
2、the family 31戴红霞,殷磊姑息护理 新型的护理方式护士进修杂志,():2何婉珠,黄素枰,林利荣,等居家晚期患者临终关怀护理的探讨现代医院, ,():3 Spillman B C , Pezzin L E.Potential and active family caregivers : changing networks and the “ sandwich generation” J .Milbank Q , 2000 , 78(3):347-374 Palliative care could be defined as any relative, friend or partne
3、r who has a significant relationship with and provides various forms of support to a person with incurable illness 1. Family member may experience a considerable burden when caring for a person with complex and serious conditions, which could affect their health and wellbeing negatively 2.1. Hudson
4、P, Payne S. Family caregivers and palliative care: current status and agenda for the future. J Palliat Med. 2011;14(7):8649.2. Kohler N, Perner A, Anders D, Brahler E, Papsdorf K, Gotze H. Family caregivers of palliative cancer patients: health-related quality of life and care-related burden. Psycho
5、ther Psychosom Med Psychol. 2012;62(5):15762.Individual Family &Social Support NetworkSystems for Health Care DeliveryCultural Communication Expectation Decision Planning Grief Elain Wittenbery, Betty Ferrell Textbook of Palliative care Patient-centered communication and palliative care Elain Witten
6、bery, Betty Ferrell Textbook of Palliative care Patient-CenteredCommunication&Palliative CareBeliefs, values,attitudes, preferences,goals, and emotionsBeliefs,values,attitudes,preferences,goals, andemotionsBeliefs, values,attitudes,preferences,goals, andemotionsPatient Family Health care term Indivi
7、dual FactorsAgeGenderIllnessGenePsychosocial CultureReligious Family FactorsStructureFunctionRelationship Environment Social NetworksCommunityHealth care DeliveryIndividual OutcomesMorbidityMortalityQuality of LifeFamily OutcomesLifestyleSatisfactionQuality of lifeEnvironment ConvenientEfficient Ful
8、l servicesIndividual Margaret el., 2006Individual -FamilyManagement Model FamilyCultural play an important role in Palliative Care in China“Raise children to the elderly endowment and death”, and it always has been emphasized Chinas “filial piety”, The elderly are willing to in their own homes, acco
9、mpanied by children through the final stages of life.Men xianwu Hospice care Tianjin: Tianjin science and technology publishing house:Chinese traditional culture about Filial Piety Filial Piety is the younger generation handling the relationship with the elders in the family should have moral qualit
10、y and must abide by the code of conductShi Lihua point out that 90% of the elderly are more likely to choose to die at home,cared by their family member 1. 40% - 80% of the dying patients in the developed countries choose died at home, because home is the most place can make them feel comfortable an
11、d safe place 2-3。1 Lihua Shi Under the background of research of Chinas ageing hospice career development strategy J Chinese medical ethics,2009。 22( 4): 82-832Stajdhar KI。 Davies B。 Variations in and factors influencing family member decisions for palliative home care J. Plliative Med,2005, 9( 1):
12、21-323 Yong-xing shi. Aged care of hospital service Situation and policy research of Shanghai。 M Shanghai Fudan University press., 2008 :74-75 .Psychological Problems for Family Members in Palliative CareDavis MP, Gutgsell T, Gamier P. What is the difference between palliative care and hospice care? J. Cleve Clin J Med, 2015, 82(9):569-571.